Day 18 Escape is happening

I was going to write about the routine of the day in my life in this hospital, but it was not going to be very interesting and I did not think anyone would really want to read about it. So I am not!

This feeding system is a system designed to keep people with a failing intestinal tract failure alive and as I am leaking at the top I am one of those. The aim of the system to give you everything you need to live through your veins and thus bypass the digestive system altogether and to do this at the start you are plugged in for 24 hours, but as I am meeting the targets they are happy for me to start the process of winding down the hours, so today I get a break for 4 hours and from Friday it will be 6 hours so it means that I can be picked up at 2 and brought back for 8. I can go home!!!! I am so happy with the prospect, although it will be awful to have to come back to sleep, however how lovely the prospect of time out will be.

We have been given some sort of diagnosis, but it is being checked and my consultant says it often changes. So I will let you all know when I know for certain and what the treatment will be. This however will be next week because it has to be discussed with a Multi Discipline Team and they meet on a Wednesday and so I expect it will be Thursday and Friday 8th or 9th March.

One thought on “Day 18 Escape is happening

  1. Great News! just having time out and in your own home will do wonders for your moral even if you do have to go back to sleep. Really is like being a prisoner, let out for good behaviour! Hopefully the snow will let up and things will return to normal. Spring into your new self and hopefully the weather with oblige too. xxx

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