Having had such good news two days ago, I had a morning of pain, tiredness and low spirits. I guess this is a bit of a pattern. The pain was my newly rested digestive system objecting to having to work again. Also the nurse decided that not only was I to eat, I had to take my medication orally and this meant that the pain relief was not working. So I have gone back to IV and liquid pain relief and this makes all the difference.
Eating is a bit of a challenge, as I have a fungal infection in my mouth so everything tastes metallic. Also I have little appetite and the hospital food is not really appealing. I am on a low residue diet, and I have a list of what I can and can’t have, so this makes it easier. I am trying hard not to overdo it.
I saw a friend Hayley and then Rowena picked me up. It was good to go home and help Rowena with her plan to go up to Edinburgh and get her 16-25 ticket renewed. It is the sort of thing I normally arrange and neither Mark or Rowena do and it is easier for me to do, it is good to have some normality.
Mark gave me a lift back, I managed to sleep all the way back in the car! Not good company, but he is just happy to see me.
Fiona Hutchinson’s cancer updates 
Much love Fiona – it is good to get your updates both on the good and the bad days. Thank you for keeping it going – wishing you strength and energy to keep going too. Two steps forward , one step back – progress is being made. Well done. Love Alis
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