On Friday I went to see Mr. Lamah the surgeon and was checked up, the wound is healing nicely, but will take a long while to close up completely. He had still not referred me, and was, I think waiting until this appointment to do so as he wanted to discharge me from his care. So he said he would refer me, after our meeting to Robin Jones the specialist who I had found through Rowena’s oncologist and my friend Anne Davidson. He had also checked and this is the right person we understand for rare and unusual sarcomas at the Marsden. So we wait again to see when I am contacted and when I get put into the next system. He did say before the first op that my recovery would be 2-3 months and with the complications has amended that to 6 months.
Each day this week a district nurse has been out to see me and to dress my wound, but I have been left alone over the weekend and I will see someone tomorrow. My wound is looking great and even I can see that it is healing.
This week I have reached a milestone – I am now a healthy BMI. This is so funny really as it is the most unhealthy way to reach it. I have lost nearly 2 stone (32lb) in 5 weeks, and can expect to loose more. The doctors are not worried and agree that I should just eat little and often and listen to my system as to what it wants to eat. Currently a very bland fibre free diet or Low residue to give it its proper name.
I have been totally exhausted at times and I find I need to be in bed, but I guess I am up a little more each day. Last night I slept for 10 hours, I cannot remember when I last did that – probably in my 20’s!
Fiona Hutchinson’s cancer updates 