I went up to the Royal Marsden in the Fulham Road on Monday to see Dr. Robin Jones. He is a really lovely doctor and really knowledgable about Desmoid tumours. There is a debate as to whether or not this is a cancer, but he is an oncologist and the treatment for these tumours is by surgery, chemotherapy and radio therapy. Technically the tumours are benign as they do not metastasise but it can come back aggressively in the same place.
Currently, after the scan last week, I am clear and so I am going to watch and wait. I have another scan scheduled for the end of July and will be regularly scanned thereafter for the foreseeable future. I do not have to have chemotherapy which is a great relief.
The journey up there with Mark in the car was a bit of a nightmare as I was very sick both journeys. I had had for breakfast one of the protein fortisip drinks so I get all the nutrients I need and this formed clots in my stomach with the stomach acid and blocked everything. I can now only tolerate clear fluids and it is pretty boring! I am also quite hungry and would like to have something a bit more satisfying.
There has been no news about what is happening to me, but I am going to be going into the The Royal Sussex County Hospital to have the operation. There is a gastro x-ray meeting today and they are going to discuss me, so I should find out something today as to when and what they are going to do.
It has been lovely weather and I have been sitting out in the garden a bit, and I am looking forward to a day in my workshop getting on with a few enquiries from shops and customers.
Fiona Hutchinson’s cancer updates 